Arda

Age 5, Istanbul, Turkey

Arda was born a healthy and sweet baby boy. He developed just like his older brother until age four. He loved to go to kindergarten, to play with children, and to swim and play football with his brother.
In June 2015, he got a very high fever and experienced a seizure. After this incident, he began to have problems with his balance. In September 2015, after countless doctor visits, an MRI confirmed Arda had VWM. Since his diagnosis, Arda has lost his ability to walk and stand.
There is no cure for this monster disease. It is heartbreaking to see my son deteriorate every day. All we can do is live in hope that one day a cure will be found.