Isabella

Age 10, Illinois, USA

Isabella was 2 years old when my sister noticed that she seemed to stumble more than other children her age. Though her pediatrician believed Isabella would outgrow it, she did not. In 2009, at age 4, Isabella was referred to a neurologist. A few months later, Isabella was diagnosed with Vanishing White Matter.
Isabella wears orthotics and struggles to physically keep up with peers. However, she’s as happy as can be and brings laughter to everyone, especially her cousins. There is no treatment or cure for VWM, but we are on the quest to find one.