Isaiah

Isaiah was born healthy and as cute as a button. Just before his 2nd birthday, he started to fall while walking. With each day, his gait became more unsteady.
Our pediatrician referred us to a neurologist at the Children’s Hospital in Kansas City. Isaiah went through a series of tests; both MRI and blood tests confirmed his diagnosis of Vanishing White Matter (VWM).
Since his diagnosis, Isaiah has stopped walking, crawling, eating, and using his arms and hands for certain activities. He has had breathing problems along with severe muscle tightness, shaking (ataxia), and constipation. He has fought a long, hard battle but has maintained his sweet personality throughout all the pain. He loves to make people laugh and smile and his positivity is radiant. By loving me, he makes me a better person every day. He also reminds all of us to be strong. It is a true blessing to have so many people in our life that love Isaiah. Isaiah died on June 29, 2016, at age 5.