Matthew

Died in 2018

Matthew was born a sweet, healthy baby boy. In December 2007, while playing with his sisters and cousins, Matthew hit his head and became unresponsive. We rushed him to the hospital. After days of multiple tests, the doctors informed us Matthew had Leukodystrophy or Vanishing White Matter. We had no idea what the disease was or what to expect.

Matthew began to loose his abilities: first his walking, then eating, and lastly his ability to speak.
It was incredibly difficult to watch our son deteriorate before our eyes.

In addition to VWM, Matthew suffers from severe scoliosis and bone loss. Though Matthew has been hospitalized in critical condition on several occasions, he has defied all odds and remained a strong survivor. Matthew is a beloved hero and miracle. We will never give up fighting for him as he grows older. Matthew died in 2018.