Michael

Age 11, Ontario, Canada

It was February 2008,  Michael was 18 months old when he got a simple cold that he just could not shake. My husband and I took Michael to Sick Kids Hospital in Toronto. After a blur of tests, no definitive diagnosis could be made and the doctors were very concerned.
Fortunately, the Director of Neurology was able to arrange for more testing and a diagnosis was finally made. We got news we never expected or wanted to hear: Michael has Vanishing White Matter (VWM).
Though I remember little from that meeting, I do remember the doctor telling me we would be fortunate if Michael reached his 10th birthday.