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Reese

Age 8, Ontario, Canada

Reese’s diagnosis has been a long journey. When Reese was born, she was a healthy child who developed typically until the age of 3.

One morning, Reese woke up and could not stand up. After she spent a week in the hospital, we received a false diagnosis for a condition we were told would improve over time. Relieved that she was going to be okay, we left and waited. Indeed, her condition did seem to improve until she had another setback.

In August 2012, we received the dreaded news our daughter was diagnosed with VWM and would have a short life. We would have to watch her deteriorate and never know when we will lose her.

Despite every challenge Reese has faced, she has been strong. She is a happy, fun-loving little girl and she is what gets our family through the hard days with her smiles and positive attitude. Reese doesn’t let the fact that she is in a wheelchair stop her from doing things she loves. We don’t want this disease to stop her from the life she deserves. Please help us find a cure.

#believeinreese https://www.facebook.com/groups/1393612534219492/

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